ELIXIR teams up with TMF to develop Ethics Policy
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ELIXIR’s Ethics policy will provide a framework of ethical and regulatory standards for the provision of sensitive personal data originating from life-science research. Based on relevant regulations and best practices, it will cover ethics committee approvals, data provision and data access, informed consent, confidentiality and data security amongst others.
As part of the collaboration, TMF’s experts in data protection will conduct a survey of how sensitive biomedical data is made available for research at ELIXIR Nodes in different countries throughout Europe.
The Policy will be reviewed by Ethics experts on the ELIXIR Scientific Advisory Board, before being submitted to the ELIXIR Board for approval. It will then be regularly reviewed to address the latest technological, legal, ethical and societal developments.
Further information
